Organización destacada: Fundación Internacional contra la Macroglobulinemia de Waldenstrom (IWMF)
The IWMF Mission
The International Waldenstrom's Macroglobulinemia Foundation (IWMF) is a patient-founded and patient-driven international nonprofit organization with a simple but compelling vision and mission: to have a world without WM (Waldenstrom's macroglobulinemia) to support and educate everyone affected by Waldenstrom's macroglobulinemia (WM) while advancing the search for a cure.
Waldenstrom's macroglobulinemia (WM) is a non-Hodgkin's lymphoma or cancer of the blood. Ninety-five percent of all lymphoplasmacytic lymphoma (LPL) is WM. WM is a rare cancer seen only in approximately three to five per million people per year, with about 1,500 new cases diagnosed in the US each year. Although WM is currently incurable, patients are living longer and enjoying higher-quality lives with deeper remissions and fewer side effects due, in part, to critical research funded by IWMF.
The IWMF Story
Fundada en 1994 con sólo 21 pacientes, estamos orgullosos de que hoy más de 21.000 personas en más de 90 países acudan a IWMF en busca de información, educación y apoyo. Con sede en Sarasota (Florida), IWMF tiene filiales internacionales en seis continentes y atiende a personas afectadas por la MW en todo el mundo.
Más información
IWMF ofrece importantes recursos sobre cómo obtener una segunda opinión sobre afecciones médicas y cómo acudir a las citas con los profesionales sanitarios. Visite nuestro sitio web para obtener más información sobre estos temas:
Should I Get a Second Opinion? By Dr. Morie Gertz, Mayo Clinic, Rochester, MN
Getting the Most from My Provider Visit, by Dr. Morie Gertz, Mayo Clinic, Rochester, MN
Quick Guides to what Waldenstrom's macroglobulinemia is, and the services IWMF provides.
Visit the IWMF website at IWMF.COM, email at info@iwmf.com, or call the office at 941-927-4963. They are here to help and they hope that you will reach out!
